Understanding primary immunodeficiency (PI)
Understanding PI
The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
Learn more about PI
Living with PI
Living with PI
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
Learn more about living with PI
Get involved
Get involved
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
Get involved today
Advancing research and clinical care
Advancing research and clinical care
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
View resource details

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Caregiver compassion & connection guide

May 07, 2025

This guide provides practical tips and emotional support for those caring for a loved one with primary immunodeficiency (PI). From navigating medical needs to maintaining your own well-being, it offers compassionate advice to help you feel informed, empowered, and connected on your caregiving journey.

Readers may redistribute this material to other individuals for non-commercial use, provided the text, HTML code, and this notice remain intact and unaltered in any way. The Caregiver and compassion guide© may not be resold, reprinted, or redistributed for compensation of any kind without prior written permission from the Immune Deficiency Foundation.

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