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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

Rare of the rare - An IDF summit

PI regulatory disorders & unspecified PI education session

November 05, 2021
Rare of the rare - An IDF summit

Precision medicine targeted therapy for primary immunodeficiency: Where are we now?

November 05, 2021
Rare of the rare - An IDF summit

SCID education session: Post-transplant late effects in patients with SCID

November 05, 2021
Rare of the rare - An IDF summit

HLH education session

November 05, 2021
Rare of the rare - An IDF summit

Good's syndrome education session

November 05, 2021

Report explores telehealth for SCID

November 02, 2021
IDF Podcast Graphic

Addressing payer challenges & ensuring access to genetic testing

October 28, 2021
Person typing on a computer

Donor spotlight: Lois Crudden

October 27, 2021
Joan, Shane, and Kate

Make mental health a priority

October 22, 2021
IDF Podcast Graphic

Clinical research trials and you

October 15, 2021
Baby

Mom shares SCID isolation story

October 06, 2021
SCID mandated in PA newborn screenings

SCID mandated in PA newborn screenings

September 30, 2021
IDF Podcast Graphic

How one family navigates isolation for SCID during COVID

September 30, 2021
Rare of the Rare

Rare of the Rare examines SCID treatment long-term

September 28, 2021

Genetic testing helpful in PI diagnosis

September 24, 2021
Family picture

Faith guides mom with CGD

September 23, 2021

Back-to-school Q&A focuses on SCID

September 17, 2021
IDF Podcast Graphic

Teens with PI and vaccines

September 17, 2021

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

See all support groups

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.