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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

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Jerry Winkelstein helped build IDF’s respected reputation

July 02, 2025
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Foundation Focus: June 2025 update with CEO Jorey Berry

June 30, 2025
Two women completing paperwork

Financial assistance programs can help with medical bills

June 25, 2025
Woman in lab coat pipetting need tissue culture hood.

Foundation sends letter opposing research cuts

June 16, 2025
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How Medicaid cuts could impact a family affected by SCID

June 16, 2025
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Lunch & Learn: Understanding genetic variants in APDS

June 10, 2025
Older woman receives vaccine in the upper arm.

Update: What RSV preventatives mean for those with PI

June 10, 2025
Catilin BenVau stands with co-workers at a rocket testing site 2

Rocket scientist with CVID encourages others to pursue their passion

June 03, 2025
Immune Deficiency Foundation text logo

Jorey's monthly wrap-up: May 2025

May 29, 2025
Little girl ill in bed

Consider increasing Ig therapy for breakthrough infections

May 28, 2025
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Lunch and Learn: Understanding genetic variants in APDS

May 27, 2025
Vaccine

FDA’s new COVID-19 vaccine framework places immunocompromised people at risk

May 22, 2025
Amy Johnson at the river

Woman with CVID encourages others to ‘get involved’

May 21, 2025
Kim DiGangi smiles and wave at Walk for PI

Peer support program builds connection

May 08, 2025
hands in shape of heart

Caregiver compassion & connection guide

May 07, 2025
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Problems in practice: Insurance with Dr. Marcus Shaker

May 06, 2025
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Stay informed to protect against contagious disease outbreaks

April 29, 2025
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Living well with PI: Impact of federal policy changes on the PI community

April 24, 2025

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.