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2024 National Immunoglobulin (Ig) Treatment Survey

In 2024, the foundation surveyed more than 850 patients with primary immunodeficiency (PI) to understand their experiences with immunoglobulin (Ig) replacement therapy.

Who took the survey?

854 individuals completed the survey between May and August 2024. Note that because not every respondent answered every question, the number of respondents who answered each question is given for each analysis (n=).

  • The most reported diagnoses were common variable immune deficiency (CVID; 71%), hypogammaglobulinemia (12%), and specific antibody deficiency (6%).
  • 92% of respondents identified as white, 3% identified as two or more races or ethnicities, 2% identified as Hispanic/Latino, 1% identified as Black/American African, 1% identified as American Indian/Alaska Native, and 1% identified as Asian/Pacific Islander.
  • Respondents ranged in age from 2-89 years old, with a median age of 59 years old.
  • 14.6% of patients were male at birth, while 85.2% were female and 0.1% were intersex at birth.
Demographics of the people who took the 2024 Ig Treatment Survey.
Demographics of the people who took the 2024 National Immunoglobulin Treatment Survey.

Explore survey results

Explore select 2024 National Ig Treatment Survey results using this interactive dashboard (note that the dashboard works best on laptop or desktop computers). How to use the dashboard:

  • Use the slider at the bottom right to zoom in or the double-headed diagonal arrow to view full screen.
  • Navigate through four pages of data (General health, IgRT and side effects, Serious adverse events, and Treatment satisfaction) using the arrows in the bottom grey bar.
  • Interested in a particular group of respondents? Filter the data on each page using the navy blue dropdown menus at the top. 

Thank you, survey participants!

The foundation could not generate these insights without your contributions. Interested in participating in the next survey? Make sure you get an invitation by signing up for an IDF account!

This page contains general medical and/or legal information that cannot be applied safely to any individual case. Medical and/or legal knowledge and practice can change rapidly. Therefore, this page should not be used as a substitute for professional medical and/or legal advice. Additionally, links to other resources and websites are shared for informational purposes only and should not be considered an endorsement by the Immune Deficiency Foundation.