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Group of young women.

Get involved

Be a hero for those with primary immunodeficiency (PI). Change lives by promoting awareness and taking action throughout your community.

Every voice is needed

According to the National Institutes of Health, there are approximately 500,000 individuals in the U.S. with a primary immunodeficiency. Every year, thousands go undiagnosed. By the simple act of getting involved, you can change this and make a difference. Whether you are just learning about PI, have been diagnosed for decades, are a caregiver or healthcare professional, every voice is needed. And it’s not just individuals who can get involved. Community groups and corporations are encouraged to join forces as volunteers and donors.

Participate in IDF events

IDF hosts support groups and educational events for those living with PI and their caregivers. We also present workshops for healthcare professionals as well as our signature events: Walk for PI, Advocacy Day, and a teen and young adult escape.

Attendees at 2019 PI Conference in NC.

Share your experience with PI to help make a difference

IDF is conducting a national survey to learn more about the experiences of people with primary immunodeficiency receiving immunoglobulin (Ig) replacement therapy. The information gathered from the survey helps create manuscripts for publication in peer-reviewed journals to help broaden the understanding of PI and improve the diagnosis and treatment of these rare, chronic disorders. 

Panel discussion at the 2019 IDF Conference.

Share on social

Join the more than 32,000 people following IDF on social media. You can post about your own experience with PI or share IDF’s post. Find IDF on these platforms:

Walk for PI participants take a selfie.