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MISSION STATEMENT: The Immune Deficiency Foundation improves the diagnosis, treatment, and quality of life of people affected by primary immunodeficiency through fostering a community empowered by advocacy, education, and research.

VISION STATEMENT: IDF seeks to ensure that everyone in the U.S. affected by PI has a fully informed understanding of

(1) the PI diagnosis that affects them,
(2) all available treatment options,
(3) the expected standard of care,
(4) all of their opportunities for connection and support within the PI community.

CORE VALUES: Inclusion, Integrity, Innovation

GUIDING PRINCIPLES: Commitment, Leadership, Accountability

CORNERSTONES: Stakeholder Impact, Collaboration, Data-driven Decision Making, Forward-Thinking, Constituent Promise

CONSTITUENT PROMISE: Transparency, Trust, Compassion


  • OBJECTIVE ONE IDF will grow its community of those affected by PI threefold over the next five years.
  • OBJECTIVE TWO IDF will strive to remove disparities in diagnosis and treatment to promote more equitable outcomes for all PI patients.
  • OBJECTIVE THREE IDF will improve the diversity of its community to better reflect the U.S. population.

We are Rare and we are powerful. Like the stripes of a zebra, no two people are the same. At IDF, we celebrate this uniqueness every day. An inclusive, diverse, and fair workplace makes our community more powerful. As a commitment to these values, IDF requires associates and vendors to have EEO and non-discrimination policies in place as a condition of partnering with our organization. The Immune Deficiency Foundation is proud to be an equal opportunity employer.

CLICK HERE to download a copy of IDF's Strategic Plan