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SCID Compass is a program of the Immune Deficiency Foundation, funded through a federal grant from the Health Resources and Services Administration, an agency of the U.S. Department of Health and Human Services. SCID Compass is designed to guide parents of infants diagnosed with severe combined immunodeficiency (SCID), people living with SCID, and the medical community through the journey of learning about this rare life-threatening medical disorder and finding support to navigate the lifelong health challenges.

About SCID

SCID is a serious primary immunodeficiency (PI) in which there is a combined absence of T lymphocyte and B lymphocyte function. SCID is fatal without a stem cell transplant or corrective gene therapy. There are at least 13 different genetic defects that can cause SCID.

SCID Newborn Screening

IDF has strongly supported and worked tirelessly in efforts to make sure that every state includes SCID on their newborn screening panel. Learn about IDF's past, present, and future involvement in SCID newborn screening.

Story Of David Vetter

David Vetter, affectionately known as the boy in the bubble, was born with SCID. For 12 years, David captured the world’s attention as he lived in protected environments to maintain relatively germ-free surroundings at Texas Children’s Hospital.
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