Accredo Healthcare
Amgen Rare Disease
Amgen Rare Disease manufactures Actimmune, recombinant interferon gamma-1b, which is used to lower the risk of serious infection in those with chronic granulomatous disease.
Amgen Rare Disease also offers free dihydrorhodamine (DHR) testing for CGD through ARUP Laboratories.
Project ECHO clinician series: Treatment options for the PI community
May 08, 2023
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Paper explores implementation of newborn screening for SCID and other conditions
May 05, 2023
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What the end of the public health emergency means for those with PI
May 04, 2023
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Xembify
Administration: SCIG
Concentration: 20% (200 mg/mL)
Approved for: Ages 2+
Report side effects/adverse reactions at https://www.grifols.com/en/notification-of-adverse-reaction.
Privigen
Administration: IVIG
Concentration: 10% (100 mg/mL)
Approved for: Ages 3+
Report side effects/adverse reactions at Adverse.Events.Global@cslbehring.com or 1-866-915-6958.
Panzyga
Administration: IVIG
Concentration: 10% (100 mg/mL)
Approved for: Ages 2+
Octapharma and Pfizer both distribute Panzyga. Each company has its own product website and may have its own copay assistance program. If your infusion center or hospital supplies Panzyga, it is typically distributed by Octapharma. If you get Panzyga through a specialty pharmacy/for home care, it is distributed by Pfizer.
Report side effects/adverse reactions at 201-604-1137.
Octagam
Administration: IVIG
Concentration: 5% (50 mg/mL) or 10% (100 mg/mL)*
* Octagam 10% is approved for chronic immune thrombocytopenia and dermatomyositis.
Approved for: Ages 6+
Octapharma and Pfizer both distribute Octagam. Each company has its own product website and may have its own copay assistance program. If your infusion center or hospital supplies Octagam, it is typically distributed by Octapharma. If you get Octagam through a specialty pharmacy/for home care, it is distributed by Pfizer.
HyQvia
Administration: Facilitated SCIG
Concentration: 10% (100 mg/mL)
Approved for: Ages 2+
Report side effects/adverse reactions at pvsafetyamericas@takeda.com or 1-877-825-3327.
