| Immune Deficiency Foundation

Understanding primary immunodeficiency (PI)
Understanding PI
The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
Learn more about PI
Living with PI
Living with PI
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
Learn more about living with PI
Get involved
Get involved
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
Get involved today
Advancing research and clinical care
Advancing research and clinical care
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
Learn more about research

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Person typing on a computer

Congenital athymia diagnosis begins at newborn screening

Taking notes while eating lunch

Lunch & Learn: Congenital athymia 101

Study finds CGD carriers exhibit symptoms of disorder

Person typing on a computer

Why laboratory-developed tests’ fate matters for rare disease patients

London

Donor spotlight: London

Medicare

Medicare and primary immunodeficiency

New encrypted email system to protect the exchange of information

pring 2022 Advocate Cover

Spring 2022 IDF ADVOCATE Newsletter

Cindy Kisik, adult with ADA-SCID, advocates for mental health awareness

Immunoglobulin

Immunoglobulin replacement therapy: As individual as you

Immune Deficiency Foundation
7550 Teague Road, Suite 220
Hanover, Maryland 21076

P: 410-321-6647