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Pain Management: From Infusions To Everyday Life

Many people living with primary immunodeficiency rely on injectable medical therapies such as immunoglobulin replacement therapy, or Ig, to maintain healthy lives. Receiving these infusions can be frightening to those who are afraid of needles, and can challenge anyone who has to receive multiple needle pricks. Beyond needle pain, people with PI may also be living with chronic pain, causing issues such as arthritis, inflammation, or muscle aches. Pain management is crucial and necessary to help...

Be Your Own Healthcare Advocate: An IDF Forum, March 25, 2021

Watch this IDF Forum recording to hear Kristin Epland, FNP-C discuss how to be your own healthcare advocate. This meeting was presented on March 25, 2021.

IDF Walk for PI Coast to Coast

Join the Immune Deficiency Foundation by walking with us virtually from Coast to Coast. Learn more about our virtual walks at www.walkforpi.org.

Why We Walk for PI

Inspire those around you to walk for people affected by primary immunodeficiency. Learn more and register at www.walkforpi.org.

Congressional Briefing: The Immunocompromised and the Coronavirus

Listen to the virtual congressional briefing as we hear from immunocompromised individuals and advocates to discuss the immunocompromised and the coronavirus: what policymakers need to know to protect this population.

SCID Compass Lunch & Learn: March 10, 2021

Listen to this SCID Compass Lunch & Learn featuring Donald Kohn, MD as he discusses gene therapy for SCID. This lunch and learn was presented on March 10, 2021. For more information about SCID Compass, please visit our website: www.scidcompass.org.

COVID-19: Where are we now? Where are we headed?: An IDF Forum, March 4, 2021

Watch this IDF Forum recording to hear Kathleen Sullivan, MD, Ph.D., and Maria Jimena Gutierrez, MD discuss updates on COVID-19 & vaccines: Where are we now? Where are we headed? This meeting was presented on March 4, 2021.

Managing Stress and Isolation During the Ongoing Pandemic: An IDF Forum, February 25, 2021

Watch this IDF Forum recording to hear Jodi Taub, LCSW discuss managing stress and isolation during the ongoing pandemic. This meeting was presented on February 25, 2021.

Genetic Counseling_part of the SCID Compass Series

Receiving advice or support after diagnosis of a genetic condition can be overwhelming for families. One resource for information about the condition and for counseling related to living with the uncertainties and the concern about your child is genetic counseling. Genetic counselors work alongside your medical team to advise individuals and families affected by genetic disorders like Severe Combined Immunodeficiency, or SCID. Listen as Barbara Biesecker, Ph.D. shares her expertise in genetic...

SCID Compass: Understanding SCID

Finding out your child has SCID is scary, but with the right information and support, your journey with SCID can be manageable. In this video, learn how newborn screening is essential to SCID diagnosis and isolation keeps a baby safe from life-threatening infection.

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Patients and Families

The Immune Deficiency Foundation is the national patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases through advocacy, education, and research.

IDF Insurance Center

Our Patient Insurance Center provides information regarding insurance issues, as well as other possible sources of assistance, for you and your family.

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Locate a Physician

We understand the challenges in finding a specialist who treates patients with a primary immunodeficiency disease. IDF maintains a database to help patients, family and friends locate a physician.

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Peer Support

The IDF Peer Support Program is a caring community that connects people and patients who share similar relationships to primary immunodeficiency (PI). Participation in the program give syou the opportunity interact with one of IDF's peer support volunteers, who is a trained volunteer with personal experience living with PI.

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