The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
Today marks the first day of the seventh annual International Plasma Awareness Week (IPAW), which will run from October 7-11. This joint initiative of the Plasma Protein Therapeutics Association (PPTA) and its member companies is designed to:
Plasma is the straw-colored liquid portion of blood comprised of water, salts, and proteins. These proteins are necessary for carrying out critical functions in the human body, such as providing antibodies to fight diseases. If a person has insufficient levels of any one plasma protein, his or her body cannot carry out vital functions, causing a variety of chronic and life-threatening medical conditions.
Plasma is used to create lifesaving therapies to treat primary immunodeficiency diseases (PI), and many other life-threatening diseases. The plasma derived therapy that is most often used by those living with PI is immunoglobulin (Ig) replacement therapy, which can be infused intravenously or subcutaneously.
We hope you’ll help us during IPAW by sharing the importance of plasma donations. Remember to highlight the transformational impact plasma donations have on the lives of those living with the rare diseases who rely on plasma-based therapies to stay healthy.
Use #IPAW2019 on social media when sharing your experiences, materials, and facts on plasma donation, and watch the video below for more information.
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The Immune Deficiency Foundation improves the diagnosis, treatment, and quality of life for every person affected by primary immunodeficiency.
We foster a community that is connected, engaged, and empowered through advocacy, education, and research.
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