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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

son kisses mother on cheek

Study confirms many X-linked CGD carriers experience symptoms

December 11, 2024
Nurse examining patient with the text "Decoding PI: Unraveling the GI Connection".

Decoding PI: Unraveling the GI connection

December 06, 2024
Bob LeBien and family

Bob LeBien’s leadership a guiding force for IDF and IPOPI

December 04, 2024
Child receiving vaccine

Statement regarding the leadership of the U.S. Department of Health and Human Services

December 02, 2024
Genetics and CVID

Genetic testing can narrow CVID diagnosis

November 21, 2024
Man talks to someone via video chat on his phone.

Sustaining the telehealth revolution

November 18, 2024
Ariana thumbnail

Get Connected Groups expand to meet PI community needs

November 14, 2024
Colemans

Family navigates both CVID and SAD diagnoses

November 07, 2024

Q&A: Antibody deficiencies with Dr. Luke Wall

November 07, 2024
thumbnail for Decoding PI: Antibody deficiency

Decoding PI: Antibody deficiencies

November 05, 2024
Doctor on computer

Consulting Immunologist Program educates clinicians

October 30, 2024
thumbnail for the ChronicXTwenties podcast which features three circles of Immune Deficiency Foundation colors, and the text "young adulthood, rare disease, and the joy you deserve".

ChronicXTwenties: Heartbreakingly beautiful (Part 2)

October 30, 2024
Older woman receives vaccine in the upper arm.

Update: What RSV preventatives mean for those with PI

October 24, 2024
Family together smiling

PI diagnosis can pose challenges in obtaining life insurance

October 24, 2024
thumbnail for the ChronicXTwenties podcast which features three circles of Immune Deficiency Foundation colors, and the text "young adulthood, rare disease, and the joy you deserve".

ChronicxTwenties: Heartbreakingly beautiful (Part 1)

October 23, 2024
Gloved hand uses tweezers to remove a section of a paper drawing of DNA.

Gene therapy makes headway in PI treatment

October 17, 2024
Headshot of Dr. Emily Harris.

Blaese awardee targets diagnosis and treatment of Evans syndrome

October 10, 2024
Woman getting a shot in her upper arm from healthcare provider.

Ensuring clinical trial diversity for emerging rare disease therapies

October 08, 2024

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

See all support groups

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.