The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
Curtis Anderson was diagnosed with Common Variable Immune Deficiency (CVID) at nine years old. Over 35+ years later, Curtis and his wife, Koryn, have continued to manage his condition and have become active participants in the IDF community. Together, they’ve attended IDF forums and regional and national conferences. When IDF announced the inaugural Walk for PI in Chicago in 2013, they were all in.
Curtis goes on to explain, “We have participated in every Chicago walk since 2013. IDF continues to be a constant source of support for our family. As a result, we focus our time and energy each year on increasing awareness and sponsorship for IDF through this annual event.”
When participating in IDF Walk for PI, Curtis and Koryn started small their first few years. They never expected to receive such increasing and continued support from their family, friends, and coworkers, and 2020 was no exception.
Curtis shares, “With 2020, there were countless competing charities and causes that needed assistance. We knew that a lot of our circle would be financially unable to support IDF as they had previously. However, we were absolutely astonished and overwhelmed by the outpouring of support we received in such unprecedented times. People that knew about my condition and remembered our annual walk continually reached out to see how we were doing and whether we were doing the walk in 2020. We were blessed that so many people kept us in their thoughts and charitable giving plans in 2020 despite the challenges. In fact, our 2020 team fundraising total was the highest total thus far!”
Team CuKo was able to raise over $14,000. Curtis and Koryn were amazed and grateful for their success but attributed a few methods to their fundraising success. When asked what fundraising advice they would give to newcomers, Curtis answered with the following four approaches:
As an organization, we want to give a huge thank you to Curtis, Koryn, and Team CuKo! The support you provide is vital to the PI community, and it does not go unnoticed. We are excited to see Team CuKo have even more success in 2021. The IDF Walk Team is undoubtedly rooting for Curtis to be walking around Chicago in his zebra costume again!
As IDF Walk for PI 2021 is quickly approaching, we ask that you stay tuned to our IDF Walk for PI Facebook (@WalkforPI). Over the next month, we will be announcing the walk dates and locations, new features for the year, and when registration opens. We can’t wait for you to stride with IDF pride!
Receive news and helpful resources to your cell phone or inbox. You can change or cancel your subscription at any time.
The Immune Deficiency Foundation improves the diagnosis, treatment, and quality of life for every person affected by primary immunodeficiency.
We foster a community that is connected, engaged, and empowered through advocacy, education, and research.
Combined Charity Campaign | CFC# 66309