IDF continues fight to convert Medicare IVIG Demo into permanent benefit

In 2012, in response to advocacy by the Immune Deficiency Foundation, Congress passed a law establishing a unique Medicare demonstration project that allowed enrollees with primary immunodeficiency (PI) to receive intravenous immunoglobulin therapy (IVIG) in the home. The IVIG demonstration (demo project), which was extended in 2017, aids thousands of individuals with PI by covering lifesaving IVIG treatments in the comfortable and safe environment of their home. Unfortunately, the demo project is set to conclude at the end of 2020. Through advocacy and the assistance of the PI community, IDF is striving to make this coverage of IVIG at home a permanent benefit.

IDF is currently working with Congressional representatives to introduce legislation that would make in-home IVIG coverage a lasting benefit and would extend the demo project until the permanent benefit takes effect. During IDF Advocacy Day on April 23, 2020, members of the PI community will gather on Capitol Hill to advocate for this very issue. Additionally, the PI community can aid in the effort by sharing their stories about their experience with the IVIG demo or with in-home IVIG covered by private insurance.