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Marian Furst: Advocating for a better future

April 27, 2020

Marian Furst, an active member of the IDF community, was diagnosed with Common Variable Immune Deficiency (CVID) in the spring of 2010. After receiving her diagnosis, Marian proceeded to learn as much as she could about primary immunodeficiency (PI), which led her to the Immune Deficiency Foundation (IDF). She immediately got involved and began attending multiple events, including the 2011 IDF National Conference held in Phoenix, AZ. After the conference, Marian became more involved by volunteering her time as a Peer Support Coach, attending more events, and later started advocating for the PI community through IDF Advocacy Day.

Today, Marian continues to make a positive impact as an IDF Health Access Advocate by being consistently involved in legislation and state policies regarding those with rare diseases in her home state of Utah. Even during this scary and hectic time that we’re all going through, she remains actively involved, creating unity in the PI community. At the start of the pandemic, Marian was in contact with her senator, encouraging him to vote for a bill to establish a state Rare Disease Advisory Council and volunteered to serve as a member of the council. Thanks to Marian and the others who spoke out to their legislators, the bill passed both houses of the legislature in March and was signed by Governor Herbert of Utah.

In addition, Marian participated in IDF Virtual Advocacy Day which was held on April 23, 2020. As part of the day, Marian advocated for issues to improve community access to quality care; screening and diagnosis; protections for the immunocompromised; and research and emerging therapies.

Marian states, “I know that IDF is a solid organization that I can feel good about representing, and I know the PI community and I can both gain from my efforts.”