The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
In just a few minutes, you can learn some basic but important information about your medical care and how to stay healthy in the coming year. IDF’s Consulting Medical Advisor for Health Equity Dr. Nicole Rochester shares health guidelines in two short videos, “Five Questions to Ask Your Doctor” and “Five Tips for a Healthy 2022.”
Dr. Rochester is a board-certified pediatrician, professional health advocate, TEDx and keynote speaker, health equity consultant, and the CEO of Your GPS Doc, LLC, a company that helps aging individuals, those with chronic illnesses, and their family caregivers navigate the healthcare system. She has an active presence on social media and produces the YouTube show, Navigator Nuggets.
Dr. Rochester obtained her undergraduate degree from Johns Hopkins University and her medical degree from the University of Maryland School of Medicine. She completed her pediatric residency training at Children’s National Medical Center in Washington, DC.
“Five Questions to Ask Your Doctor” is a primer on the key questions you should pose to your health provider during a visit so that you can make the most of your appointment and leave feeling confident that you understand your diagnosis and what steps you can take to get better. The first three questions are adapted from The Institute for Healthcare Improvement's Ask Me 3 Campaign.
Those questions are:
“Five Tips for a Healthy 2022” encourages people to take charge of their health and become an advocate for themselves in their medical care.
Dr. Rochester’s tips include:
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The Immune Deficiency Foundation improves the diagnosis, treatment, and quality of life for every person affected by primary immunodeficiency.
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