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Patient advocacy engagement toolkit

August 09, 2022

At IDF, advocacy is an essential element in achieving our mission of improving the diagnosis, treatment, and quality of life of those affected by primary immunodeficiency (PI). To overcome healthcare barriers faced by the PI community, IDF maintains a robust advocacy program that focuses on national, state, and local healthcare issues. 

This toolkit walks PI community members through the basics of legislative and administrative advocacy and how they can get involved in the process. Reviewing this material will help individuals engage with their legislators and agency officials and learn how they can help ensure that laws and regulations are meeting the unique needs of those in the PI community. 

Advocacy is a collaboration between IDF and our volunteers. We encourage those in the community to explore this resource and reach out to IDF staff to join a team effort toward real change through advocacy. Thank you to our dedicated volunteers, and happy advocating!

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