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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

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Supporting siblings of children with chronic illness

February 25, 2022
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2021 Community Impact Flyer

February 23, 2022
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Toolkit offers quick access to SCID diagnosis and treatment

February 19, 2022
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Understanding immunological testing: An IDF Forum

February 17, 2022

Siblings need support after SCID diagnosis

February 16, 2022
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How you can be an effective vaccine advocate

February 14, 2022
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What to ask your healthcare provider

February 11, 2022
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SCID Compass Lunch & Learn: February 9, 2022

February 11, 2022
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COVID-19 Update: Vaccines, monoclonal antibodies, antivirals

February 10, 2022

SCID Compass Lunch & Learn: February 2, 2022

February 04, 2022
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COVID-19: An update and Your questions Answered: An IDF Forum, February 3, 2022

February 03, 2022
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'Even in the darkest times, there is hope'

February 03, 2022
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SCID Compass toolkit

February 03, 2022
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IDF advocate connections: becoming a rare disease advisory council member

January 31, 2022
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SCID Angels awards research grants

January 29, 2022
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Donor spotlight: The Myjak family

January 28, 2022
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Ensuring access to care tops IDF’s policy priorities

January 27, 2022

Monitor transplants for SCID - even into adulthood

January 26, 2022

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

See all support groups

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.