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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

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Bold Conversations: Health insurance

February 21, 2025
Cropped stock photo from handbook cover.

Manual para pacientes y familias sobre inmunodeficiencias primarias, sexta edición

February 19, 2025
headset and stack of books

Q&A: Protecting yourself against COVID, flu, and RSV

December 12, 2024

Decoding PI: Unraveling the GI connection

December 12, 2024
thumbnail for the ChronicXTwenties podcast which features three circles of Immune Deficiency Foundation colors, and the text "young adulthood, rare disease, and the joy you deserve".

ChronicXTwenties: Heartbreakingly beautiful (Part 2)

October 30, 2024
thumbnail for integrative pain management video featuring two individuals doing yoga on a beach

Integrative medicine and pain management: Living well with PI

September 06, 2024
Hospital emergency entrance.

I Am A Transplant Patient emergency card

August 22, 2024
Mom jumping with two kids.

Newly diagnosed kit for kids with PI

March 22, 2024
Doctor with older patient

Bill of Rights for individuals with primary immunodeficiencies

January 25, 2024
map with points marked on journey

SCID: Questions for your child's healthcare team

September 10, 2023
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SCID newborn screening results fact sheet

September 10, 2023
family with baby

Family planning: thinking about the future

September 10, 2023
chart/table with categories

SCID family journey

September 10, 2023
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THINK ZEBRA! poster

July 24, 2023
Young woman on a bridge.

Immune Deficiency Foundation Guide for Young Adults

February 02, 2023
Girl and classmates at school writing.

IDF School Guide for Students with Primary Immunodeficiency©, Fourth Edition

August 23, 2022
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Addressing caregivers’ mental health is key after SCID diagnosis

August 01, 2022
Two ambulances parked outside of a hospital emergency room.

I Am Immunocompromised emergency card

July 18, 2022

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

See all support groups

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.