XLA Life
XLA Life fosters the unification and empowerment of the global X-Linked Agammaglobulinemia (XLA) community through education, advocacy, and initiatives that aim to improve the overall quality of life for those affected by XLA.
SCID: Questions for your child's healthcare team
September 10, 2023
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SCID newborn screening results fact sheet
September 10, 2023
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Family planning: thinking about the future
September 10, 2023
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SCID: What healthcare providers need to know
September 10, 2023
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SCID family journey
September 10, 2023
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SCID telehealth for American Indians and Alaska Natives
September 10, 2023
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FOXN1 deficiency
Also known as nude/severe combined immunodeficiency (SCID), this rare primary immunodeficiency disrupts adaptive immunity and is characterized by congenital athymia, congenital alopecia totalis, and nail dystrophy.
CHARGE Syndrome Foundation
CHARGE syndrome
CHARGE syndrome is a genetic syndrome with a known pattern of features: coloboma of the eye, heart defects, atresia of the choanae, restriction of growth and development, and ear abnormalities and deafness.
