2024 PI Conference
Join us at the Sheraton Grand Chicago Riverwalk in Chicago, IL, from June 20-22! The conference offers three days of connection, learning, and networking and features up-to-date information from world-renowned healthcare professionals and life management experts.
Mast cell activation disorder with Dr. Anne Maitland
Gene editing shows promise for Wiskott-Aldrich syndrome
Consider nurse practitioner or physician assistant for care
Mom advises parents to research and advocate for CGD
Lunch & Learn: ataxia-telangiectasia
PI and lung health
Update: UnitedHealthcare drops four immunoglobulin products from policies
Priority Health won’t cover SCIG as first-line treatment
Rare Wish
Rare Wish (a sister organization to Rare Strides ) grants wishes, funds clinical innovation, and offers free healthcare tools to improve the quality of life for families affected by rare disease.