| Immune Deficiency Foundation

Understanding primary immunodeficiency (PI)
Understanding PI
The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
Learn more about PI
Living with PI
Living with PI
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
Learn more about living with PI
Get involved
Get involved
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
Get involved today
Advancing research and clinical care
Advancing research and clinical care
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
View resource details

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Immune Deficiency Foundation

The Immune Deficiency Foundation, founded in 1980, is the national non-profit patient organization dedicated to improving the diagnosis and treatment of patients with primary immunodeficiency diseases through research, education and advocacy.

Grifols

Gamunex Connexions Program (comprehensive support program): 888-694-2686
Xembify Connections (copay assistance and patient assistance program): https://www.xembify.com/en/xembify-connexions

www.grifolsusa.com 888-474-3657

CSL Behring

www.cslbehring.com 1-877-355-4447

IDF strategic plan

Review the three strategic objectives outlined by IDF to grow its community and improve PI care.

SCID research paper explores types of uncertainty faced by parents

Taylor Kane feeds her father John Kane, diagnosed with adrenoleukodystrophy (ALD), which affected his physical and cognitive functioning.

Remember The Girls empowers women affected by X-linked conditions

Person typing on a computer

Leniolisib approved for treating ultrarare APDS 1 and 2

Students in a classroom

PI education kit for schools

Project ECHO. Health worker with patient

Project ECHO clinician series: Signs and symptoms of PI

IDF video

Lunch & Learn: What is chimerism?

Immune Deficiency Foundation
7550 Teague Road, Suite 220
Hanover, Maryland 21076

P: 410-321-6647