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PI research grants span diagnosis, T cell biology, and new treatments

June 02, 2023
Gene editing strategy for XLA with Dr. Donald Kohn's headshot.

Blaese awardee is developing a gene editing strategy to treat XLA

June 02, 2023
Jirsa Friends

Young adult with CVID strives to improve others’ lives

May 30, 2023
Project ECHO. Health worker with patient

Project ECHO clinician series: Newborn screening for SCID

May 22, 2023
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Bone marrow transplant restores health of boy with CGD

May 18, 2023

Pharming

Pharming manufactures Joenja, also known as leniolisib, the only treatment for activated phosphoinositide 3-kinase delta syndrome (APDS) approved in the U.S.

BenefitsCheckUp

National Council on Aging's BenefitsCheckUp® is a free, confidential service that connects older adults to programs that can help them stay healthy and independent. Since 2001, BenefitsCheckUp has been connecting older adults to programs that can help them afford nutritious food, prescriptions, health care, utilities, housing, and more.

Caregiver Action Network

The Caregiver Action Network (CAN) is a family caregiver organization working to improve the quality of life for those who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age.

Families USA

Families USA, the longtime national, non-partisan advocate for health care consumers, is dedicated to uplifting the voice of patients and the public to impact and improve our health and health system, toward the goal of achieving high-quality, affordable health care and improved health for all.

Family Voices

Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.

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