PI research grants span diagnosis, T cell biology, and new treatments
Blaese awardee is developing a gene editing strategy to treat XLA
Young adult with CVID strives to improve others’ lives
Project ECHO clinician series: Newborn screening for SCID
Bone marrow transplant restores health of boy with CGD
Pharming
Pharming manufactures Joenja, also known as leniolisib, the only treatment for activated phosphoinositide 3-kinase delta syndrome (APDS) approved in the U.S.
BenefitsCheckUp
National Council on Aging's BenefitsCheckUp® is a free, confidential service that connects older adults to programs that can help them stay healthy and independent. Since 2001, BenefitsCheckUp has been connecting older adults to programs that can help them afford nutritious food, prescriptions, health care, utilities, housing, and more.
Caregiver Action Network
The Caregiver Action Network (CAN) is a family caregiver organization working to improve the quality of life for those who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age.
Families USA
Families USA, the longtime national, non-partisan advocate for health care consumers, is dedicated to uplifting the voice of patients and the public to impact and improve our health and health system, toward the goal of achieving high-quality, affordable health care and improved health for all.
Family Voices
Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.

