| Immune Deficiency Foundation

Understanding primary immunodeficiency (PI)
Understanding PI
The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
Learn more about PI
Living with PI
Living with PI
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
Learn more about living with PI
Get involved
Get involved
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
Get involved today
Advancing research and clinical care
Advancing research and clinical care
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
Learn more about research

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IDF strategic plan

Review the three strategic objectives outlined by IDF to grow its community and improve PI care.

SCID research paper explores types of uncertainty faced by parents

Taylor Kane feeds her father John Kane, diagnosed with adrenoleukodystrophy (ALD), which affected his physical and cognitive functioning.

Remember The Girls empowers women affected by X-linked conditions

Person typing on a computer

Leniolisib approved for treating ultrarare APDS 1 and 2

Students in a classroom

PI education kit for schools

Project ECHO. Health worker with patient

Project ECHO clinician series: Signs and symptoms of PI

IDF video

Lunch & Learn: What is chimerism?

Healing the trauma of a life-changing PI diagnosis

Healing the trauma of a life-changing PI diagnosis

laptop

Prophylactic antibiotics and PI

Person typing on a computer

Why and how to collect a family medical history

Immune Deficiency Foundation
7550 Teague Road, Suite 220
Hanover, Maryland 21076

P: 410-321-6647