XLP Research Trust
The XLP Research Trust promotes and funds research into the cause, management, symptoms and cure for X-linked lymphoproliferative (XLP) disease; raises awareness of the disease; and is a point of contact and support for families affected by XLP.
Wiskott-Aldrich Foundation
The Wiskott-Aldrich Foundation is a volunteer run, non-profit organization, dedicated to funding research to find improved cures for Wiskott-Aldrich Syndrome, and to support for families living with the disease around the world. We are a group of passionate individuals, each with our own area of expertise, with a common mission to help families and patients with WAS.
SCID Foundation
At the SCID Foundation, our mission is to empower families affected by Severe Combined Immunodeficiency (SCID) through awareness, education, advocacy, and support.
Hyper IgM Foundation
Hyper IgM Foundation, a non-profit organization, was founded in 2015 by dedicated parents, healthcare professionals and friends. Our mission is to improve the treatment, quality of life and the long term outlook for children and adults living with Hyper IgM through research, support, education, and advocacy to families and patients.
Chronic Granulomatous Disease Association of America
The Chronic Granulomatous Disease Association of America (CGDAA) is committed to advocating on behalf of patients, carriers, and families by providing clear, accurate, and independent news and information about CGD and advancing CGD research.
US Hereditary Angioedema Association
Founded in 1999, the US HAEA was created by people with HAE and their caregivers who wanted to change the quality of life for others, who like them, had spent years suffering through the pain and misunderstanding of HAE. Today, our organization connects more than 8,000 people with HAE and their caregivers across the United States with valuable support services, advocacy initiatives, medical research, and more.
CGD Society
The Chronic Granulomatous Disorder Society (CGD Society) is based in the UK and was originally registered as a charity in 1991 under the name The Chronic Granulomatous Disorder Research Trust. Over the years, the charity has transformed from a small parent support group into a leading global source of information and support for Chronic Granulomatous Disorder (sometimes referred to as Chronic Granulomatous Disease).
A-T Children’s Project
The A-T Children’s Project is a nonprofit organization that raises funds to support and coordinate biomedical research projects, scientific conferences, and a clinical center aimed at finding a cure for ataxia-telangiectasia, a lethal genetic disease that attacks children, causing progressive loss of muscle control, cancer, and immune system problems.
United States Immunodeficiency Network (USIDNET)
The United States Immunodeficiency Network (USIDNET) is a research consortium established to advance scientific research in the field of primary immunodeficiency (PI). USIDNET is an National Institutes of Health (NIH)-funded research program of the Immune Deficiency Foundation (IDF).
Pfizer Inc.
Pfizer's purpose is breakthroughs that change patients’ lives. We pursue that goal relentlessly and innovate every day to make the world a healthier place. It was Charles Pfizer’s vision at the beginning and it holds true today.

