Lunch and Learn: Congenital Athymia
Primary immunodeficiency patient registry moves into a new era
Centers for Medicare and Medicaid Services (CMS)
The Centers for Medicare and Medicaid Services (CMS) is the federal agency that provides health coverage to more than 160 million through Medicare, Medicaid, the Children's Health Insurance Program (CHIP), and the Health Insurance Marketplace. CMS works in partnership with the entire health care community to improve quality, equity and outcomes in the health care system.
Center for Biologics Evaluation and Research (CBER)
The Center for Biologics Evaluation and Research (CBER) is a division of the Food and Drug Administration (FDA) whose mission is to protect and enhance public health through regulation of biological products to ensure their safety, effectiveness and timely delivery to patients. CBER regulates plasma-derived products like immunoglobulin (Ig), as well as monoclonal antibodies and other biologics.
National Center for Immunization and Respiratory Diseases (NCIRD)
The National Center for Immunization and Respiratory Diseases (NCIRD) is the division of the U.S. Centers for Disease Prevention and Control (CDC) that provides information on general vaccinations and specific precautions for individuals affected with primary immunodeficiencies.
International Nursing Group for Immunodeficiencies (INGID)
The International Nursing Group for Immunodeficiencies (INGID) was formed in 1994 by nurses who were working with children and adults diagnosed with primary immunodeficiency disorders. INGID is run by members and for members. The aims of INGID are to improve and extend the quality of nursing care of immunodeficiency patients, and to increase the awareness and understanding of immunodeficiencies amongst nurses.
European Society for Immunodeficiencies (ESID)
The European Society for immunodeficiencies (ESID) is a non-for-profit association that was created in 1994. ESID has been striving to improve the knowledge in the field of Primary Immunodeficiency (PID) by encouraging research, developing educational programs and fostering cooperation among all those involved in the diagnosis, treatment and management of these diseases.
NMDP
NMDP is a global nonprofit leader in cell therapy, helping save the lives of patients with blood cancers and disorders. Since our founding in 1987, the world has evolved—and so have we. Throughout the years, we’ve been known by many names, including the National Marrow Donor Program® and Be The Match®.
Infusion Nurses Society
The Infusion Nurses Society (INS) is dedicated to exceeding the public’s expectations of excellence by setting the standard for infusion care. Membership is open to nurses and health care professionals from all practice settings who are involved in or interested in the specialty practice of infusion therapy.
Immunoglobulin Nursing Society
Immunoglobulin Nursing Society (IgNS) is a professional organization dedicated to nursing professionals in education, management, practice and research in the field of immunoglobulin (Ig) therapy.

