Pharming manufactures Joenja, also known as leniolisib, the only treatment for activated phosphoinositide 3-kinase delta syndrome (APDS) approved in the U.S.

National Council on Aging's BenefitsCheckUp® is a free, confidential service that connects older adults to programs that can help them stay healthy and independent. Since 2001, BenefitsCheckUp has been connecting older adults to programs that can help them afford nutritious food, prescriptions, health care, utilities, housing, and more.

The Caregiver Action Network (CAN) is a family caregiver organization working to improve the quality of life for those who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age.

Families USA, the longtime national, non-partisan advocate for health care consumers, is dedicated to uplifting the voice of patients and the public to impact and improve our health and health system, toward the goal of achieving high-quality, affordable health care and improved health for all.

Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.

The Invisible Disabilities® Association (IDA) is a 501(c)3 nonprofit. We are passionate about providing awareness that invisible illness, pain and disabilities are very real! Our mission is to encourage, educate and connect people and organizations touched by illness, pain and disability around the globe. Envision with us, a world where people living with illness, pain and disability will be Invisible No More®.

NCQA gives consumers the information they need to find high-quality health care. We do this by measuring the quality of practices, providers, health plans and other health care organizations. NCQA's report cards help you identify high-performing health care organizations. 

The National Disabilities Rights Network (NDRN) is a nonprofit membership organization for the federally mandated Protection and Advocacy (P&A) Systems and Client Assistance Programs (CAP) for individuals with disabilities. We’re the only legally based advocacy organization established by Congress to protect the rights of all individuals with disabilities.

The National Organization for Rare Disorders (NORD) is a non-profit organization that provides information, programs, and services for thousands of rare medical conditions, including primary immunodeficiencies. Our Respite Program provides financial assistance to enable caregivers a break to attend a conference, event, or simply have an afternoon or evening away from caregiving.

The Air Care Alliance is a 501(c)(3) nonprofit public service organization representing a nationwide network of volunteer pilot groups that deliver impactful and inspiring service through aviation. ACA encourages volunteerism among pilots, helps patients access the free air transportation they need, and ensures that charitable aviation remains a viable resource to those who need it most.