School Guide, Fourth Edition
This free resource for parents/guardians, students, and school personnel summarizes considerations and legal rights for students with PI and also includes templates for formal education and health plans.
Get a medical kit
Be prepared to treat a zebra with our free medical kit:
Clinician Finder
We maintain a database of clinicians who specialize in treating PI. Use our tool to find clinicians across several medical specialties near you.
Clinician Finder
We maintain a database of clinicians who specialize in treating PI. Use our tool to help connect your patient with a specialist, or get listed as a PI specialist yourself.
Consulting Immunologist Program
Healthcare providers can connect for free with an immunologist specializing in PI to go over the diagnosis, treatment, or management of patients with PI.
Study examines procedure to treat severe CGD infections
July 25, 2023
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THINK ZEBRA! poster
This 11"x17" poster explains what it means to THINK ZEBRA! All ages identify with zebras, and it has been an especially good way for children with PI to describe their disease to others—they are like zebras.
THINK ZEBRA! poster
July 24, 2023
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Chapter 15: Diseases of Immune Dysregulation: STAT1 and STAT3 Gain of Function
Download this chapter from the IDF Patient & Family Handbook for Primary Immunodeficiency Diseases, Sixth Edition.
