Become a health access advocate
IDF health access advocates serve as the local voice to media and government officials and play a crucial role in advocating for legislative issues related to PI.
Sign up for Action Alerts
When policymakers need to hear the PI community’s perspective, you will receive an Action Alert by email. Customize each alert with your information and hit send. It's that easy.
Take action
When we need elected officials and other policymakers to hear the PI community’s perspective, we send an Action Alert to the community. Customize each alert with your information and hit send. It’s that easy.
Lymphoma Research Foundation
The Lymphoma Research Foundation is the nation’s largest non-profit organization devoted exclusively to funding lymphoma research and supporting the lymphoma community through evidence-based education, support services, and resources.
National Neutropenia Network
Fanconi Cancer Foundation
Previously known as The Fanconi Anemia Research Fund (FARF), The Fanconi Cancer Foundation (FCF) aims to harness hope through the funding of scientific research, advocacy, education, and support services for individuals and families affected by FA and associated cancers.
Barth Syndrome Foundation
We are the only world-wide volunteer organization dedicated to saving lives through education, advances in treatment, and finding a cure for Barth syndrome (BTHS).
Lupus Foundation of America
Our mission is to improve the quality of life for all people affected by lupus through programs of research, education, support and advocacy. They are focused on achieving the following disease-specific outcomes: reduce the time to diagnosis, ensure people with lupus have an arsenal of safe and effective treatments, and expand direct services and increase access to treatment.
Autoimmune Association
The only national nonprofit health agency dedicated to bringing a comprehensive focus to autoimmunity, the major cause of over 100 serious chronic diseases. So many people are living with autoimmune diseases. Women are more likely than men to be affected; some estimates say 75% of those affected are women. Still, autoimmunity is rarely discussed as a women’s health issue.
American Kidney Fund
The American Kidney Fund (AKF) fights on all fronts for 37 million Americans living with kidney disease. Thanks to our compassionate community, we can be there for patients wherever they are in their illness. No other organization takes a more comprehensive approach, or makes a greater direct impact on patients' lives.

