NeedyMeds
NeedyMeds is a 501(c)(3) national non-profit that connects people to programs that will help them afford their medications and other healthcare costs.
Partnership for Prescription Assistance
The Partnership for Prescription Assistance brings together America’s pharmaceutical companies, doctors, other healthcare providers, patient advocacy organizations, and community groups to help qualifying patients who lack prescription coverage get the medicines they need through the public or private program that’s right for them.
Patient Notification System
Led by the Plasma Protein Therapeutics Association (PPTA), the Patient Notification System was developed by the manufacturers of plasma therapies with direct input from consumers. The Patient Notification System is a free, confidential, quick communication system providing information on withdrawals and recalls.
RxAssist
Patient assistance programs are run by pharmaceutical companies to provide free medications to people who cannot afford to buy their medicine. RxAssist offers a comprehensive database of these patient assistance programs, as well as practical tools, news, and articles so that healthcare professionals and patients can find the information they need.
Save Babies Through Screening Foundation
Save Babies Through Screening Foundation educates parents, pediatric healthcare providers, and policy makers about available comprehensive newborn screening.
Miracle Flights
We provide free commercial flights to children and their families in need of life-changing medical care not found in their communities.
Lunch and Learn: Congenital Athymia
May 10, 2023
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Primary immunodeficiency patient registry moves into a new era
May 09, 2023
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Centers for Medicare and Medicaid Services (CMS)
The Centers for Medicare and Medicaid Services (CMS) is the federal agency that provides health coverage to more than 160 million through Medicare, Medicaid, the Children's Health Insurance Program (CHIP), and the Health Insurance Marketplace. CMS works in partnership with the entire health care community to improve quality, equity and outcomes in the health care system.
Center for Biologics Evaluation and Research (CBER)
The Center for Biologics Evaluation and Research (CBER) is a division of the Food and Drug Administration (FDA) whose mission is to protect and enhance public health through regulation of biological products to ensure their safety, effectiveness and timely delivery to patients. CBER regulates plasma-derived products like immunoglobulin (Ig), as well as monoclonal antibodies and other biologics.
