Patient assistance programs are run by pharmaceutical companies to provide free medications to people who cannot afford to buy their medicine. RxAssist offers a comprehensive database of these patient assistance programs, as well as practical tools, news, and articles so that healthcare professionals and patients can find the information they need.

Save Babies Through Screening Foundation educates parents, pediatric healthcare providers, and policy makers about available comprehensive newborn screening.

We provide free commercial flights to children and their families in need of life-changing medical care not found in their communities.

The Centers for Medicare and Medicaid Services (CMS) is the federal agency that provides health coverage to more than 160 million through Medicare, Medicaid, the Children's Health Insurance Program (CHIP), and the Health Insurance Marketplace. CMS works in partnership with the entire health care community to improve quality, equity and outcomes in the health care system.

The Center for Biologics Evaluation and Research (CBER) is a division of the Food and Drug Administration (FDA) whose mission is to protect and enhance public health through regulation of biological products to ensure their safety, effectiveness and timely delivery to patients. CBER regulates plasma-derived products like immunoglobulin (Ig), as well as monoclonal antibodies and other biologics.

The National Center for Immunization and Respiratory Diseases (NCIRD) is the division of the U.S. Centers for Disease Prevention and Control (CDC) that provides information on general vaccinations and specific precautions for individuals affected with primary immunodeficiencies.

The International Nursing Group for Immunodeficiencies (INGID) was formed in 1994 by nurses who were working with children and adults diagnosed with primary immunodeficiency disorders. INGID is run by members and for members. The aims of INGID are to improve and extend the quality of nursing care of immunodeficiency patients, and to increase the awareness and understanding of immunodeficiencies amongst nurses.

The European Society for immunodeficiencies (ESID) is a non-for-profit association that was created in 1994. ESID has been striving to improve the knowledge in the field of Primary Immunodeficiency (PID) by encouraging research, developing educational programs and fostering cooperation among all those involved in the diagnosis, treatment and management of these diseases.