The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
Lemonade stands have been a longtime summer activity, but five-year-old Sadie and her family selflessly put their own spin on this tradition by collecting online and in-person donations for the Immune Deficiency Foundation (IDF). Every donation makes a difference, and they raised more than $5,000.
According to Sadie’s mother, Brianna, who is also living with PI, “Online contributions seem to be the most popular way to receive donations. Sadie is only five, so my husband and I wanted to think of a way to include her in our fundraising efforts it was important that she felt involved in the process. She loved greeting her customers and thanking them for coming. She was very hands-on and filled everyone’s cups with ice and offered lids/straws. It was a great learning experience for her, and she was proud to help.”
Since two family members are living with PI, it was important for them to give back, “Up until my diagnosis, I had never heard of PI and this was also true of most of my friends and family members. We realized it’s a smaller community that
needs the support to educate others about how they can help individuals affected by PI.”
Back in 2018, after many years of frequent infections, Sadie’s mother was diagnosed with IgA and IgG subclass 2 & 4 deficiency, and then in March 2022, Sadie was diagnosed with hypogammaglobulinemia and IgA deficiency at Boston Children’s Hospital. After her daughter’s diagnosis, Sadie would frequent IDF’s website and said, “there are so many wonderful available resources through IDF that have helped our family!”
IDF greatly appreciates the generosity of Sadie and her family, and every dollar towards the PI community makes an impact! If you are interested in making an online donation, please click here.
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The Immune Deficiency Foundation improves the diagnosis, treatment, and quality of life for every person affected by primary immunodeficiency.
We foster a community that is connected, engaged, and empowered through advocacy, education, and research.
Combined Charity Campaign | CFC# 66309