The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
IDF volunteer Debby Abell has taken the image of the traditional IDF Plasma Awareness Coordinator (PAC) visiting plasma donation centers and reinvented it. Debby became a PAC volunteer in early 2019. Mobility issues prevented her from making the long drive to the closest plasma donation centers, but this did not deter her passion to spread the word about plasma donations. She took the core tenet of the volunteer position—to raise awareness about the tremendous impact of plasma donations on the PI community—and coupled it with her creativity to reimagine how she could reach plasma donors. During her infusions, Debby spends the time creating homemade gratitude cards that she sends to plasma centers to share with donors.
“These cards are awesome,” says Lauren Syring, Public Affairs Manager at Grifols, a global healthcare company that operates the plasma centers. “The reaction to these beautiful cards has been touching of both donors and staff.”
“I’m not easily deterred,” says Debby. “If I see something that doesn’t work, I figure out ways around it so it can.” The result? New opportunities to reach plasma donors when visits are not possible.
If you or someone you know receives immunoglobulin therapy, consider becoming an IDF Plasma Awareness Coordinator volunteer and spread the word on the importance of plasma donations to your family. It’s as simple as sharing your story. Click here for more information on becoming an IDF Plasma Awareness Coordinator.
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The Immune Deficiency Foundation improves the diagnosis, treatment, and quality of life for every person affected by primary immunodeficiency.
We foster a community that is connected, engaged, and empowered through advocacy, education, and research.
Combined Charity Campaign | CFC# 66309