PI community represented at Senate committee hearing on preventable diseases and vaccines
March 06, 2019
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Understanding primary immunodeficiency (PI)
Understanding PI
The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
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Living with PI
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
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Get involved
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Advancing research and clinical care
Advancing research and clinical care
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
On Tuesday, March 5, 2019, the Senate Committee on Health, Education, Labor and Pensions held a hearing to discuss the recent outbreak of preventable diseases and the need for vaccinations in the U.S.
Community immunity, also known as herd immunity, is a pivotal issue for people with primary immunodeficiency diseases (PI), and it was important that our community was represented at this hearing as IDF President & CEO John G. Boyle was invited to serve as one of five advisory board panelists.
Click below to view the full hearing and to hear John’s testimony on behalf of individuals and families affected by PI.
IDF is proud to lend a voice to our community’s interests when critical topics need to be addressed on a local, national and international level.
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