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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

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Study shows Ig therapy is protective against measles

March 26, 2025
Advocacy

Statement on federal policy changes: Pledge to protect the immunocompromised

February 21, 2025
headset and stack of books

Q&A: Protecting yourself against COVID, flu, and RSV

December 12, 2024
Child receiving vaccine

Statement regarding the leadership of the U.S. Department of Health and Human Services

December 02, 2024
Older woman receives vaccine in the upper arm.

Update: What RSV preventatives mean for those with PI

October 24, 2024
IDF video

Immunizations and their utilization in the threat of antimicrobial resistance: 2024 PI Conference

August 05, 2024
Man with mask grocery shopping.

COVID update stresses the importance of knowing individual risk

December 20, 2023
Thumbnail of COVID's impact on the PI community webinar

COVID's impact on the PI community

December 19, 2023
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Second bivalent dose allowed for those at high risk from COVID-19

April 20, 2023
Person typing on a computer

Study looks at long-term response to COVID vaccine in immunocompromised

April 20, 2023
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Prophylactic antibiotics and PI

March 21, 2023

COVID-19 update: New booster, Evusheld protect against virus

September 09, 2022
COVID

COVID-19: What we know now

September 07, 2022
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How you can be an effective vaccine advocate

February 14, 2022
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COVID-19 Update: Vaccines, monoclonal antibodies, antivirals

February 10, 2022
COVID

COVID-19: An update and Your questions Answered: An IDF Forum, February 3, 2022

February 03, 2022

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.