The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
The Centers for Medicare and Medicaid (CMS) added more diagnoses of primary immunodeficiency diseases (PI) to be covered under the Medicare Part B benefit for immunoglobulin (Ig) replacement therapy in the home setting, as recently shared on the Immune Deficiency Foundation (IDF) blog: “More PI Diagnoses Covered for Home Ig Replacement Therapy under Medicare Part B.” This is great news for the PI community because now more people with PI can afford to receive Ig replacement therapy in a home setting. For those who have questions, we want to explain how this works and why it is helpful to our community.
As this home coverage has opened opportunities for people with PI to have home infusions, we recognize that some providers are concerned about adequate reimbursement for these services. We support adequate reimbursement to providers, but access to treatment is IDF’s priority. People with PI—or any people with any diagnosis—should never be used to make up the difference in costs. The new codes will be implemented on August 13, 2019, and will ensure increased access to home Ig replacement therapy to more people who depend upon this lifesaving therapy.
Questions about Medicare Part B coverage for PI diagnoses? Click here to Ask IDF, or call 800-296-4433.
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