The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
Over the past year, the Immune Deficiency Foundation (IDF) has worked with the Centers for Medicare and Medicaid Services (CMS) to expand access to immunoglobulin (Ig) replacement therapy for Medicare beneficiaries. In particular, IDF has advocated to expand Medicare Part B coverage for in-home Ig replacement therapy to include more PI diagnoses. The agency has been receptive to our concerns and engaged in an effort to review the PI diagnosis codes for expanded Part B coverage.
We are pleased to report that CMS has now published Change Request - 11295 that includes an additional 10 PI diagnoses to be covered under the Part B benefit for Ig replacement therapy in the home setting. The code changes will be implemented on August 13, 2019. The changes will apply to both IVIG (FUTURE Local Coverage Article: Intravenous Immune Globulin - Policy Article (A52509) and SCIG (FUTURE Local Coverage Article: External Infusion Pumps - Policy Article (A52507).These code changes will greatly expand the number of people with PI who will have access to Ig replacement therapy in the home and will benefit current and future Medicare beneficiaries in the PI community.
Below is the full list of the covered codes with the new codes listed in bold:
G11.3 Cerebellar ataxia with defective DNA repair
D80 Immunodeficiency with predominantly antibody defects
D81 Combined immunodeficiencies
D83 Common variable immunodeficiency
This is great news for Medicare beneficiaries with the 10 recently added diagnoses. IDF will continue to advocate to ensure that all individuals with PI have access to the appropriate treatments in the appropriate settings that help improve their quality of life.
Questions? Contact IDF: info@primaryimmune.org.
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