In order to capture what impact the ACA may have on patients, IDF decided to conduct a survey of PI patients in our database for 2014, 2015, and 2016. It is our hope that the data from this series of surveys will help better inform policymakers as to the experience of those in the primary immunodeficiency community, as healthcare reform evolves over the next few years. Findings from the 2015 and 2016 Health Insurance surveys will be discussed in a later report; this report describes our findings from the 2014 survey.
