The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
What are co-pay accumulator programs and how do they affect the cost of your prescriptions?
To help temper high prescription costs, many individuals living with primary immunodeficiencies (PI) receive co-pay assistance. These individuals enroll in and rely on these assistance programs offered by the manufacturer that produces their specialty medication, to help with their co-pays, for which they would usually pay out-of-pocket. However, there has been a rise in the prevalence of co-pay accumulator programs. These programs are a health insurance benefit design option in some plans that stipulate that payment from these manufacturer assistance programs are not to be counted toward individuals’ deductibles or out-of-pocket maximums, thus eliminating any long-term benefit of these programs to the patients.
Watch our latest video to learn more about how co-pay accumulators shift the costs of prescription drugs from insurance companies back to patients, and what you can do to help.
Browse IDF's video library to learn more about primary immunodeficiencies (PI) and the impact IDF has on people living with PI.
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