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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

bird

Volunteer established PI education groups 33 years ago

May 08, 2024
IDF video

Ask the expert: PI and travel

May 07, 2024
Doctor speaking with girl and her parent.

Mavorixafor approved for treating WHIM syndrome

May 02, 2024
insurance policy

Insurers block immunoglobulin access using multiple tactics

May 01, 2024
Ig graphic

Immunoglobulin product booklet

May 01, 2024
Elias cheering

Family advocates for son with NEMO

April 25, 2024
Person using pen and clipboard to fill out paperwork.

Autoimmune diagnoses may obscure primary immunodeficiency

April 24, 2024
Title slide for 2023 National Patient Survey report.

2023 National Patient Survey report

April 24, 2024
Two ambulances parked outside of a hospital emergency room.

¡Estoy inmunodeprimido! tarjeta de emergencia

April 18, 2024
School nurse holds stethoscope to child's heart

School nurses aid in care of children with primary immunodeficiency

April 16, 2024
woman and child gardening

Spring 2024 IDF ADVOCATE newsletter

April 16, 2024
Three doctors huddled in a discussion

Primary immunodeficiency education series boosts knowledge

March 26, 2024

Ask the expert: PI and fatigue

March 26, 2024
Y-shaped antibody molecule.

New COVID-19 preventative Pemgarda authorized for immunocompromised

March 26, 2024
Mom jumping with two kids.

Newly diagnosed kit for kids with PI

March 22, 2024
IDF publications laid out on a table with blue IDF tablecloth.

Newly diagnosed kit for adults with PI

March 22, 2024
woman standing in yellow flowers

Physical therapist understands PI as patient and provider

March 21, 2024
Matthew Jacobsen at 13, far right, with his father, mother, Gina, and sister (from left to right).

UnitedHealthcare beneficiaries fight for access to immunoglobulin

March 14, 2024

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

See all support groups

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.