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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

Diagnosis specific: Wiskott Aldrich syndrome (WAS)

October 14, 2020

Diagnosis Specific: Severe Combined Immunodeficiency: Where Are We and Where Are We Going?

October 14, 2020
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Diagnosis specific: Hemophagocytic lymphohistiocytosis (HLH)

October 14, 2020
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Diagnosis specific: Hyper IgE syndrome/JOB syndrome

October 14, 2020
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Managing sinus issues: An IDF Forum, October 8, 2020

October 08, 2020
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Connection and knowledge at Rare of the Rare

October 02, 2020

Managing GI issues

October 01, 2020

Rare of Rare features SCID expert

September 17, 2020
Alexa at four-years-old

Journey to Alexa's life day

September 03, 2020
IDF video

PI: The basics: An IDF Forum, September 1, 2020

September 01, 2020
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Plasma Hero launched

August 31, 2020

Parents connect at SCID Angels for Life

August 21, 2020

SCID Compass receives $2.97M grant

August 19, 2020

Create your own Faces of IDF Handout

August 10, 2020

Volunteer treasures IDF friendships

August 05, 2020

Long-time IDF volunteer finds love, support within her zebra family

July 23, 2020
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PI & wellness: An IDF Forum, July 11, 2020

July 11, 2020
Kid in wheelchair holds "Top Team Award" certificate at St. Louis 2019 Walk for PI.

IDF 101 Forum: An introduction to IDF, July 8, 2020

July 08, 2020

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.