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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

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All Copays Count Coalition disappointed in decision to appeal court ruling

December 05, 2023
Thumbnail Mast Cell Activation Disorder Webinar

Mast cell activation disorder with Dr. Anne Maitland

November 30, 2023
gene editing

Gene editing shows promise for Wiskott-Aldrich syndrome

November 30, 2023
NA PA

Consider nurse practitioner or physician assistant for care

November 27, 2023
Cristiano

Mom advises parents to research and advocate for CGD

November 14, 2023
Thumbnail: Lunch and Learn: ataxia telangiectasia

Lunch & Learn: ataxia-telangiectasia

November 14, 2023
IDF video

PI and lung health

November 03, 2023
A person walking through health insurance options

Update: UnitedHealthcare drops four immunoglobulin products from policies

November 02, 2023
Ig graphic

Priority Health won’t cover SCIG as first-line treatment

October 31, 2023
Bold conversations podcast graphic

Health Disparities in Primary Immunodeficiency with Dionne Stalling

October 26, 2023
IDF video

Lunch and Learn: ADA-SCID Gene Therapy Update

October 26, 2023
IG safety graphic

Safety important for successful immunoglobulin replacement therapy

October 24, 2023
website on computer

Immune Deficiency Foundation launches new streamlined and user-friendly website

October 19, 2023
SCID Accomplishments Pic

SCID Compass recognized for supporting families through newborn screening

October 13, 2023
Featured image of the fall 2023 IDF Advocate cover.

Fall 2023 IDF ADVOCATE newsletter

October 13, 2023
Maria, Eva, Tony, and Antonio Banda.

Brother with CGD gets lifesaving stem cell donation from sibling

October 11, 2023
Woman shows pharmacist her phone.

Letter to Secretary Becerra on copay accumulator court decision

October 06, 2023

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.