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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

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Paper explores implementation of newborn screening for SCID and other conditions

May 05, 2023
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What the end of the public health emergency means for those with PI

May 04, 2023
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Update - Support the HELP Copays Act and fight unfair copay accumulators

May 02, 2023
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Undiagnosed episode 2: "The gardner"

May 01, 2023
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Dancer with Wiskott-Aldrich syndrome wins Arnold fitness contest

April 28, 2023
IDF video

Lunch & Learn: APDS: What it is, isn't, and how it differs from other primary immunodeficiencies

April 28, 2023
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Are you missing patients with PI? (Rheumatology)

April 26, 2023
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Are you missing patients with PI? (Pulmonology)

April 26, 2023
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Are you missing patients with PI? (Infectious disease)

April 26, 2023
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Are you missing patients with PI? (Hepatology)

April 26, 2023
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Are you missing patients with PI? (Hematology/Oncology)

April 26, 2023
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Are you missing patients with PI? (Gastroenterology)

April 26, 2023
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Are you missing patients with PI? (ENT)

April 26, 2023
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Are you missing patients with PI? (Dermatology)

April 26, 2023
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Are you missing patients with primary immunodeficiency?

April 26, 2023

Improving PI diagnosis with machine learning

April 25, 2023
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Immunoglobulin inaccessible to some disabled by PI

April 25, 2023
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Project ECHO clinician series: Antibody deficiencies

April 24, 2023

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.