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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

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Undiagnosed episode 1: "The caretaker"

March 06, 2023

Patient-informed continuing education course on PI wins award

March 02, 2023

SCID Compass video guides parents through family planning

February 24, 2023

IDF Clinician Finder lists providers who specialize in PI

February 17, 2023
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Lunch & Learn: Chronic neutropenia 101

February 10, 2023

CVID diagnosis sheds light on a lifetime of infections

February 09, 2023
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Bold conversations part 1: What is health equity?

February 06, 2023
Young woman on a bridge.

Immune Deficiency Foundation Guide for Young Adults

February 02, 2023

Study shows gene therapy is effective for Artemis-SCID

February 01, 2023

Renowned immunologists join IDF’s Medical Advisory Committee

January 31, 2023
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Update - Evusheld no longer authorized in the U.S.

January 26, 2023

Son with chronic granulomatous disease goes through BMT with family’s support

January 25, 2023
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Lunch & Learn: Specific antibody deficiency

January 25, 2023
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IDF serves thousands through education, advocacy, and research efforts

January 24, 2023
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Medicare Home IVIG Benefit: FAQs

January 19, 2023
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Skilled Nursing Facilities with Dr. M. Elizabeth M. Younger

January 18, 2023
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2022 Community Impact Flyer

January 17, 2023
Susan Day is surrounded by her family, from left, son Jackson, husband Jason, and son Jace.

Mom’s common variable immune deficiency diagnosis explains lifelong infections and fatigue

January 09, 2023

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.