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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

COVID

COVID-19: What we know now

September 07, 2022
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B-cell reconstitution and IgG infusion for SCID

September 06, 2022
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How the Inflation Reduction Act tackles healthcare costs

September 02, 2022

Family coping with chronic granulomatous disease relies on tight bonds

August 31, 2022

UCLA researcher to update status of ADA-SCID gene therapy trials

August 30, 2022

Educate schools on primary immunodeficiency to better support your child

August 27, 2022

Donor spotlight: Little zebra and her family raise money for IDF through lemonade stand donations

August 26, 2022
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Managing autoimmune issues and primary immunodeficiency

August 26, 2022
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Guide for students with primary immunodeficiency updated for back-to-school season

August 23, 2022
IDF Podcast Graphic

Returning to in-person events

August 23, 2022
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IDF School Guide for Students with Primary Immunodeficiency©, Fourth Edition

August 23, 2022

Be your healthcare general manager in journey with PI

August 22, 2022
Doctor with older patient

Managing primary immunodeficiency during the senior years

August 17, 2022

How to navigate health insurance and Medicare with a PI diagnosis

August 15, 2022
Students in a classroom

Back to school with primary immunodeficiency

August 11, 2022
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Patient advocacy engagement toolkit

August 09, 2022
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Foro de la FID: Descripción general del sistema inmunológico

August 08, 2022
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New diagnostic code for ultrarare primary immunodeficiency promises multiple benefits

August 02, 2022

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.