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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

IDF video

Hyper IgM syndrome: T cell markers as a guide to treatment & severity: 2024 PI Conference

August 01, 2024
Dermatology and PI

Conference session explores susceptibility to skin conditions in PI

August 01, 2024
IDF video

PI & aging: 2024 PI Conference

August 01, 2024
Jax and Lincoln Ramirez in pool

Boy with IPEX treated with gene therapy at Stanford University

July 19, 2024

Bold Conversations: Social determinants of health

July 15, 2024
Award winner Taylor Swinehart with Jorey Berry and Brian Rath

Foundation honors PI community supporters at 2024 conference

July 11, 2024
'Compromised' documentary movie graphic

‘Compromised: Life Without Immunity' profiles families affected by PI

June 27, 2024
Medicare

Take time to compare original Medicare versus Medicare Advantage

June 24, 2024
Laura Zamora and her daughter at the beach thumbnail

Woman with hyper IgE syndrome focuses on the positive

June 14, 2024
film reel with the words Reel Talk as conference logo

Conference features documentary screening

June 13, 2024
Man swabs his cheek for a genetic test.

Why genetic testing for primary immunodeficiencies may be useful

June 11, 2024
map of US with pins for cities

Walk event launched in eight cities across the U.S.

June 05, 2024
Ezra toddler 2

Teen hosts podcast featuring peers with hyper IgM syndrome

May 31, 2024
Nurses Advisory Committee members 2024 edit

New NAC members dedicated to solving the ‘puzzles’ of PI

May 23, 2024
Woman uses asthma inhaler.

Primary immunodeficiency can bring other immune system diagnoses

May 15, 2024
bird

Volunteer established PI education groups 33 years ago

May 08, 2024
IDF video

Ask the expert: PI and travel

May 07, 2024
Doctor speaking with girl and her parent.

Mavorixafor approved for treating WHIM syndrome

May 02, 2024

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.