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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

Darcy and friend

Law student with PI lends talent to IDF

December 14, 2023
IDF Podcast Graphic

ADA-SCID Gene Therapy Update with Dr. Donald Kohn

December 11, 2023
Dr. Megan Cooper in her laboratory.

Discovery of new PI shows value of grants for exploratory research

December 08, 2023
autoimmunity pic

Autoimmunity in PI causes blood disorders, GI issues, lung problems

December 06, 2023
Technician holds vial of blood while checking paperwork.

FDA must consider patient access in seeking test regulations

December 05, 2023
undiagnosed podcast graphic

Undiagnosed (feat. The Autism Dad): Father and Son

December 05, 2023
Print Material Fallback

All Copays Count Coalition disappointed in decision to appeal court ruling

December 05, 2023
Thumbnail Mast Cell Activation Disorder Webinar

Mast cell activation disorder with Dr. Anne Maitland

November 30, 2023
gene editing

Gene editing shows promise for Wiskott-Aldrich syndrome

November 30, 2023
NA PA

Consider nurse practitioner or physician assistant for care

November 27, 2023
Cristiano

Mom advises parents to research and advocate for CGD

November 14, 2023
Thumbnail: Lunch and Learn: ataxia telangiectasia

Lunch & Learn: ataxia-telangiectasia

November 14, 2023
IDF video

PI and lung health

November 03, 2023
A person walking through health insurance options

Update: UnitedHealthcare drops four immunoglobulin products from policies

November 02, 2023
Ig graphic

Priority Health won’t cover SCIG as first-line treatment

October 31, 2023
Bold conversations podcast graphic

Health Disparities in Primary Immunodeficiency with Dionne Stalling

October 26, 2023
IDF video

Lunch and Learn: ADA-SCID Gene Therapy Update

October 26, 2023

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

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IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.