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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

IG safety graphic

Safety important for successful immunoglobulin replacement therapy

October 24, 2023
website on computer

Immune Deficiency Foundation launches new streamlined and user-friendly website

October 19, 2023
SCID Accomplishments Pic

SCID Compass recognized for supporting families through newborn screening

October 13, 2023
Featured image of the fall 2023 IDF Advocate cover.

Fall 2023 IDF ADVOCATE newsletter

October 13, 2023
Maria, Eva, Tony, and Antonio Banda.

Brother with CGD gets lifesaving stem cell donation from sibling

October 11, 2023
Woman shows pharmacist her phone.

Letter to Secretary Becerra on copay accumulator court decision

October 06, 2023
IDF video

PI & the Microbiome with Dr. Joud Hajjar

October 06, 2023
Bold conversations podcast graphic

Bold Conversations part 4: Health disparities in PI with Dr. Vivian Hernandez-Trujillo

October 02, 2023
Carol Ann Demaret holds her son David Vetter in July 1977.

Carol Ann Demaret advocated for SCID—and IDF

September 20, 2023
IDF video

Lunch and learn: Breastfeeding and CMV

September 19, 2023
Woman with her hand to her head and article title.

Study shows CVID patients at higher risk for neurologic issues

September 15, 2023
Man blowing his nose.

Update: Fall immunizations: COVID-19, flu, and RSV

September 13, 2023
Person typing on a computer

Volunteer spotlight: Rafhaela (Ella) Vedia

September 13, 2023
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SCID: Questions for your child's healthcare team

September 10, 2023
Print Material Fallback

SCID newborn screening results fact sheet

September 10, 2023
family with baby

Family planning: thinking about the future

September 10, 2023
Print Material Fallback

SCID: What healthcare providers need to know

September 10, 2023

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.