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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

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PI community represented at Senate committee hearing on preventable diseases and vaccines

March 06, 2019
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Treatment experiences and preferences among patients with primary immunodeficiency: National survey of patients (2018)

March 05, 2019
Tamia and Aaron

Connecting the dots to diagnosis

February 22, 2019
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SCID Compass – An educational program of the Immune Deficiency Foundation

February 15, 2019
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Miracle flights offers medical travel assistance for children with CGD and Families

February 01, 2019

Two new webinars offer families insight on SCID

January 31, 2019

One family’s experience participating in IDF research

January 31, 2019
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A family affair: One family’s journey with severe combined immunodeficiency (SCID)

January 25, 2019
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Helping families take charge of adenosine deaminase (ADA)-severe combined immunodeficiency (SCID)

January 22, 2019
Kaliq and Alia Naffouj at the Great Wall of China

Taking on an imperfect world and making it the best he can

January 17, 2019
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Body temperature and fever in patients with primary immunodeficiency

January 15, 2019

Chronic granulomatous disease (CGD) - IDF Reel Stories, Lloyd Blackwell

January 11, 2019

Common variable immune deficiency (CVID) - IDF Reel Stories, Michele Howard

January 11, 2019

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.