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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

Ariell with family

Arielle’s PI journey led her to advocating for the immunocompromised

October 31, 2025
Boy holding heart symbol

How Medicaid cuts could impact a family affected by SCID

June 16, 2025
Myles Temple holding his stem cells for BMT

Powerlifter with SCID finds strength in family, friends, and faith

February 19, 2025
Carol Ann Demaret holds her son David Vetter in July 1977.

Carol Ann Demaret advocated for SCID—and IDF

September 20, 2023
Person typing on a computer

Volunteer spotlight: Rafhaela (Ella) Vedia

September 13, 2023

Evangelina, born with ADA-SCID, thrives after gene therapy

July 15, 2022
Compass

SCID Summit: A parent's journey with ZAP70 deficiency

July 06, 2022

Cindy Kisik, adult with ADA-SCID, advocates for mental health awareness

June 13, 2022

SCID advocate devotes herself to helping parents navigate medical world

May 13, 2022

Toddler with ADA-SCID waits for life-saving treatment

March 15, 2022
Solene

'Even in the darkest times, there is hope'

February 03, 2022
Everett

Follow a family's journey with SCID

December 10, 2021
Alexis Parrish holds a master's degree in marine science from the University of South Alabama.

Cord transplant offers 'second chance at life'

December 08, 2021
Baby

Mom shares SCID isolation story

October 06, 2021
IDF Podcast Graphic

How one family navigates isolation for SCID during COVID

September 30, 2021

USA Today spotlights family affected by SCID

July 14, 2021

A parent's journey with SCID

June 10, 2021
maria diaz unexplainable miracles

'Blessed with unexplainable miracles'

February 18, 2021

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

See all support groups

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.