With more than 400 primary immunodeficiency diseases (PI) recognized by the International Union of Immunological Societies, we have created an online guide to helping you understand them.
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This three-day conference is the largest gathering of PI patients in the world, bringing together the entire PI community (patients, caregivers, and clinicians) for three days of connection, learning, and networking in a fully engaging virtual environment with in-person sessions at three locations.
Set for July 22-24 at the Chicago Marriott Oakbrook in Chicago, the IDF Teen & Young Adult Escape is an opportunity for teens ages 13-17 and young adults ages 18-25 to come together and meet others who understand what it’s like to be a young person with PI.
The cost is $25 per family, and the registration deadline is July 14.
Guided by a licensed mental health professional, these monthly groups are a great opportunity for caregivers 18 years or older and connected to a person with a PI to meet and explore shared experiences.
Visit our calendar of events and register now for our next monthly Virtual Caregivers Support Group meeting.
The more we learn about plasma, the more we realize its life-saving potential. We need your help. We need heroes to step up, donate, and save lives.
Listen along as we explore your questions and dive into topics that matter to you.
Access all IDF's video channels, including stories from people living with PI and presentations from Healthcare Professionals.
Our Patient Insurance Center provides information regarding insurance issues, helpful resources and other possible sources of assistance.
Wherever you are on your journey with Severe Combined Immune Deficiency (SCID), SCID Compass will help you find the information and support you need.
Visit Living with CGD, the IDF resource for the Chronic Granulomatous Disease community.
