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Undiagnosed: Reuben & Sherri Johnson on CGD, chronic illness, and the fight for healthcare

December 17, 2025

To view a transcript of this podcast, click here

Reuben Johnson was diagnosed with chronic granulomatous disease, or CGD, at the age of ten. So much of his story takes place after his family had found some of the answers that are often elusive for others. Reuben learned early in life that joy is essential and simple. However, he would soon have to confront the cruelty of sickness and the cold realities of a medical system that either didn't understand him or didn't care. These things formed a perfect storm in the center of his life that threatened to wash away the joy that once came so easily to him.

Find Reuben and Sherri on LinkedIn: www.linkedin.com/in/flyduo/

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