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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

Denise GCG

Three stories intertwined by the power of connection.

March 26, 2026
Selfie of Heather Stewart in a bedroom

Retiree conquers her fears to become a committed plasma donor

March 05, 2026
Chris Simpson

Man with X-linked hyper IgM first-ever to receive novel gene therapy

February 11, 2026
Chrissy Prickard posing behind a large number sign

Donated plasma saved a pregnant mother's baby boy

February 02, 2026
Irene Chen with cells

Pharmacist with CVID receives bone marrow transplant

January 15, 2026
Undiagnosed podcast thumbnail with person walking in shadow toward light. Text in corner reading "Stories of the long journey to PI diagnosis".

Undiagnosed: Reuben & Sherri Johnson on CGD, chronic illness, and the fight for healthcare

December 17, 2025

Heather Smith championed SCID families

December 16, 2025
Jason Walp and wife dressed up

Couple turns challenges into hope through plasma donation

December 15, 2025
Hayden Scott as a adult standing in a radiation machine.

PhD student with PI works to improve cancer care

December 04, 2025
Ariell with family

Arielle’s PI journey led her to advocating for the immunocompromised

October 31, 2025
Ike Ezeonwu posing in a grassy field.

The 460-time donor: How Ike Ezeonwu turned plasma donation into a calling

October 29, 2025
'Compromised' documentary movie graphic

Documentary film earns film festival recognition

October 16, 2025
Katherine Taylor with dogs mural

Muralist with CVID spreads joy through her art

October 15, 2025
Nurse Riko Siempre depicted in cartoon format

From the frontlines to behind the screen nurse VTuber champions plasma

August 27, 2025
Winkelstein tease

Jerry Winkelstein helped build IDF’s respected reputation

July 02, 2025
Tom Gagen and grandson at a St Patricks day parade

Grandpa Gagen's journey to platelet donation

June 24, 2025
Savino family posing in a backyard with their two dogs.

In times of crisis, look for the helpers, like plasma donor Antonio Savino

June 23, 2025
Boy holding heart symbol

How Medicaid cuts could impact a family affected by SCID

June 16, 2025

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

See all support groups

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.